The internet was not working on my computer earlier this week. Maybe a good thing. I just sat down and for the first time since my diagnosis spent a chunk of time reading about GIST (this is a great site
http://www.gistsupport.org/for-new-gist-patients/faqs.php). As I read today it hit me that I have cancer. I just kept thinking I just have a tumor, it happens to have cancer in it but I don't have cancer running through my body. But no, I actually have what is called GIST cancer. Thankfully they found it early and the tumor is still small. I guess as I read today I realized how much this will change my life. Even after they get it out it can recurr, metastasize, etc. At some point soon I will be a cancer survivor. Approximately 15 of every million get it. I knew I should have been buying lotto tickets :)! Generally it is found in people ages 50+ and most often in the stomach or sometimes the bowels. Mine is in pretty rare location, the duodenim in the small intestine. It is covering my ampula (I believe it is the opening to the bile duct). That is what makes the surgery really tricky. It sounds like we may start with chemo first to shrink the tumor and try to get it small enough to do a smaller surgery. If they can't get it small enough they'll do what is called a whipple surgery. From what I understand the chemo is much more mild than traditional chemos. I think it comes in pill form, doesn't cause my hair to fall out and doesn't make people too sick. It's funny how I always thought how horrible it would be to lose your hair (I'm sure it is a difficult thing) but how secondary that becomes when you have a life threatening illness. It really puts life in perspective. Well, enough random thoughts for the day. I am loving my kids, date nights with my hubby and fun times with friends. Enjoying all of it and hoping that this portion of our ride won't last too long, hopefully by summer we'll have it beat and be laying on a beach somewhere together. Thanks for the prayers and all the love. We are so blessed!