Thursday, September 12, 2013

Professional Pictures - All Three!

I just love these pictures with all three kids.  The only thing missing is a picture of Hailey.  I know a lot of families who have lost children that include a picture of their child with the other children.  By this point I had hoped to have a nice canvas picture of Hailey, but I hadn't gotten it yet because I didn't want to put one of her up without putting one of the other two.  This is part of the reason I wanted these professional pictures in the first place - so that I could get good pictures of all the kids so that I can have a canvas of each one hanging on the wall.
 
 

 
 


 
I had to add this last one because the photographer made Lexy put her arms around Nathan.  She is smiling, but trying not to laugh!

Professional Pictures - Lexy

My little mother.... (My mom always told me how I would get up with my baby brother in the middle of the night and sit by her while she fed him.)  It must be a first-born thing.  Lexy has been such a big help with Kinsley.  She even tackled poopy diapers until Kinsley pooped in the middle of a change and it shot across the carpet.  She has been a little hesitant since then.  But she is always there when Kinsley cries and has made bottles, changed her clothes, and given her baths.  Lexy is growing up to be such a beautify young woman.  I can't believe my baby is so big.  She has a great sense of humor and loves to sing and draw.  I just love these pictures of her, but the last one is my favorite of all.  I had one of those moments when I saw this picture where it was almost like I was seeing her for the first time and I just thought she was so beautiful.  Love my not-so-baby girl!
 
 




Professional Pictures - Nathan

Oh, my sweet boy.  He has been the loviest and snuggliest of all my children.  Are boys just that way?  He has been such a good big brother to Kinsley.  So sweet and concerned about her well-being.  In my personal opinion he has always been a cute kid, but he sure is growing up to be such a handsome boy.  Just love him!!  Again, here are just a few of my favorites...
 
 




Professional Pictures - Kinsley

It was so hard to pick just a few pictures from our photo shoot.  Our photographer did a great job.  Kinsley was such a good baby throughout the session.  She was quite the trooper through outfit changes and everything.  Below are a few of my favorites.
 







Wednesday, September 11, 2013

Breastfeeding

As I stated in a previous post, all of the testing on my milk came back clear.  Woohoo!  I was so excited and I just new that Kinsley would latch on like a pro and all would be well.  Hmmm....I should know by now that my plans are not always how it works.  I tried to latch Kinsley on and knew right away that she was not latching on correctly.  I was way to scared of getting an infection to push it on my own so we made an appointment with the lactation specialist at NCH.  Unfortunately, she was not that helpful.  We bought shields and we bought a special bottle that allows you to attached a small tube to your breast so that the baby can get milk even if nothing is coming from your breast. 

After my milk came in I had another set-back.  I realized that I really only had two ducts that were working on one side.  So even though the other ducts in my breast were producing milk there was no where for the milk to drain.  One of two things was going to happen.  Either the ducts would just dry up and stop producing milk or I would get an infection.  I was devastated because I felt like we had done so much and come so far for it not to work now.  The doctor had told me that they could go in and try to re-open the ducts which sounded awfully painful to me.  We waited to see what happened.  Thankfully I didn't get an infection.  I had damage on the other side also with limited milk coming out so Kinsley would just get mad when she tried to latch on.  I had one day where I thought maybe it was going to work and she stayed latched on for about 45 minutes.  Then I pumped afterward to see what was left and she hadn't really gotten anything.  Since it wasn't working well and I was a little sore afterwards I just gave up on the idea of breastfeeding.

I was determined to feed Kinsley breast milk though.  So I pumped....and pumped.....and pumped.....and pumped...and (well, you get the idea..).  It was so hard.  I have a new respect for women who have done this.  We think feeding a brand new baby 8-10 times a day is a lot - try feeding 16-20 times.  I had to stay hooked up to the pump for 30 minutes each side to get the milk out because of my lack of ducts and Kinsley usually took 30-45 minutes to drink her bottle. How did I find any extra time for anything, you ask??  At first I didn't.  I was very overwhelmed and beginning to wonder if it was too much for my family to have my every minute dedicated to pumping/feeding. 
 
Thankfully one of the things I had purchased was a pumping bra.  This allowed me to be hands free while pumping.  This way I could play a game of uno with the older kids, or help with homework, or as time went on, I would sling the pump (which came in a shoulder bag) over my shoulder, throw on a breastfeeding cover and fold laundry, or wash dishes, or vacuum.  I pumped in the airport... I pumped in the car... I pumped in the kids pick-up line at school...I even pumped while driving (is that illegal?)  I just didn't have much of a choice sometimes.   I felt that pumping had become my life and I needed to find a way to make things work with all the other activities that needed to happen!
 
The other thing that saved me through this process was Aaron and the kids.  I would not have gotten any sleep if it weren't for Aaron.  He was such a huge help.  I would have to get up and pump in the middle of the night for 45 minutes to an hour and then I would have had to feed Kinsley for the same amount of time only to have to do it again within the next hour.  Not cool!  So Aaron took baby feeding duty, even after he went back to work.  Thank you, thank you, to my wonderful husband!!
 
The kids were also a huge help throughout the day when Aaron was gone.  They would feed Kinsley while I pumped many times.  I could not have done this by myself.  I took one month at a time telling myself that it was okay if I only made it one month, then two.  I pumped for over 7 months.  But I pumped and saved every ounce and was able to feed Kinsley breast milk for 10 months.  I am SO grateful for that.
 
Lesson: As I continue to learn over and over things don't usually go as I had planned.  I am a planner and I try oh-so-hard to make things go my way, but even though things don't turn out how I had them in my mind, they usually work out ok.  It doesn't mean it is easy.  I had so many days that I struggled emotionally and physically, but good or not, I am also a stubborn woman, especially when it comes to something for my kids. 
 
After my infection with Hailey I wasn't even sure that making milk was going to be an option.  So when I realized that I was making milk and it was coming out, however slow...I was determined that if the Lord would bless me with milk that was not physically dangerous to my child I was going to do whatever I needed to, to make sure she got it!  I am so thankful for that blessing from the Lord!
 

Monday, September 9, 2013

Chronic Granuloma Disease

A week after Kinsley was born we took her to a lab near the hospital to have her blood drawn for the Chronic Granuloma test.  This was the one thing the Pediatric Infectious Disease Specialist thought that Hailey might have had that would have kept her from being able to fight the infection she had.

Kinsley was a trooper and so brave.  They had to take like four full vials of  blood.  It was a crazy amount.  I don't know how she had anything left, but she didn't even cry.  It helps to have a good nurse who knows what she is doing too.  They had to check twice to make sure that they were actually suppose to take that much blood and felt horrible for doing it, but they did a great job.  A week later the result were in and they were negative.  We were very relieved!  By this time all of her other test results had also come back negative.  Phew...!

Saturday, September 7, 2013

What is the significance of Day 6?

 Before Kinsley was born I was afraid that I was going to just sit and cry.  I was afraid that having a baby in my arms again would make Hailey's death and all those emotions come to the surface.  Thankfully I think we were just too busy worrying about making sure that Kinsley was ok.  There were so many tests and small things that we focused on that our minds didn't really have time to wonder.  Things like washing all of the pump equipment with a fresh paper towel and soap so that we weren't reusing a bottle brush or anything that could possibly become contaminated in the hospital....  Using our special body washes....making sure that each nurse that came into the room actually washed her hands with soap and water and didn't just use the antibacterial liquid....
 
It's not that we didn't think about Hailey and try to figure out who exactly Kinsley looked like, but we didn't have time to dwell on the sadness.
When you lose a child there are three dates that are forever in your mind.  The first of course, is your child's birthday.  The second one is their Angel day or the day they passed.  The third day is not necessarily a date, but an age....how old your child was when they passed.  I know for many Angel mom's this last date or age is one of the hardest things to deal with and brings much anxiety when a new child is born after a loss.
I guess I am thankful that we didn't have to wait too long before we hit that mark with Kinsley.  Hailey passed when she was 6 days old.  I didn't realized that the 6-day mark was so important to the kids until Nathan brought it up after Kinsley was born.  In his little precious and innocent mind Kinsley just had to make it past day 6.  It was one of the first things he said on her 7th day of life - "Mom, Kinsley is still alive and it has been 7 days!  She isn't going to die!"  As my heart breaks and I say a prayer to myself that these sweet words from my 7-year old will be truth, I agree with him, we celebrate, and put his little mind at ease.  "Yes, sweet boy, your sister is going to be just fine."  This is not something that children should have to worry about, so I am grateful that he was able to let that worry go at that moment.

These pictures were taken on day 6.  Aaron and I also needed to celebrate a little by taking a moment to record our sweet baby with pictures.  So grateful to have made it to....and past...this day.