So like I said, it was just a typical Saturday. Until around 4:00 pm. Around this time, I started to have mild cramping in my lower abdomen & back. Concerned they might be the beginning of early labor, I took a warm bath and rested on the couch the remainder of the day. Unfortunately the cramping turned into actual contractions in the middle of the night. So after Cameron woke up & I called my parents to watch him, Brant & I headed into the hospital to get checked out.
The nurses hooked me up to the monitors and checked for dilation. I was at a 1+. So not much to worry about. They performed a fetal fibronectin (ffn) test which predicts labor. It came back negative which meant I had a 99.8% chance of not going into actual labor within 2 weeks. But just in case, they gave me steroid shots to develop baby's lungs & magnesium sulfate to prevent bleeding in baby's brain. Thanks to the magnesium sulfate, that next 24 hours were rough!! But the combination of medicines they gave me slowed down the contractions enough the doctors felt confident in sending me home after 36 hours of observation. They almost promised me they wouldn't see us again for at least 2 weeks.
Well, after a week of partial bed rest, we had a repeat of our Saturday night & Sunday morning. On May 29, we were checked into the hospital, the ffn test once again coming back negative, and I was given meds to stop the contractions. Only this time, contractions didn't stop or even slow down. And I started to dilate more. After 13 hours, I decided the only way I would be getting any sleep that night would be to get an epidural. I was told that if I didn't progress anymore and if my contractions were to slow/stop, they would discontinue the epidural in the morning.
By morning, I had progressed to a 4 with the contractions showing no sign of slowing. So, despite the 2 negative ffn tests, we prepared to have our little boy 7 weeks early. Since he was guaranteed to be quite small, we opted to try for a VBAC instead of another c-section. So we were to just sit around and wait until I was fully dilated.
Around 1:00 pm on May 30, the on-call OB came in to talk with us. She was concerned with our little boy's heart rate. Through this entire ordeal, his heart rate had never been of concern. However, in the past hour it had begun to climb quite dramatically with some very concerning dips. The OB was concerned enough she wanted to get him out ASAP. So we signed a few consent forms, Brant got dressed up in his surgical getup, the anesthesiologist got me all numbed up, and 20 minutes later I was being wheeled into the OR to have a baby. Another 20 minutes later our second son was born at 1:46 pm. At exactly 33 weeks, our baby boy was a surprising 5 lbs 15 oz & 18.75 inches long! And he had lots of hair! We couldn't believe it! Brant and I were so happy. Our little James was here! (Though it would take us a couple of days to actually come up with & settle on his first name - even longer for his middle name)
As the doctor was getting ready to close me up, she discovered a large cyst on my right ovary. Brant looked over the curtain and saw that my ovary, normally the size of an almond, was almost the size of his fist! The doctor performed a biopsy, and when she couldn't stop the bleeding, then took out the entire cyst. We were so blessed that James came when he did & how he did! Had he not, that cyst could have caused quite some troubles in the future.
Of course, with James being 7 weeks early, he was immediately admitted to the NICU for monitoring and care. We were told he could be there anywhere up to his actual due date. So we were looking at a long road of hospital visits. Overall James was healthy. He just needed to develop mentally.
My recovery from my c-section actually went really well. I was able to get up and move around that night (though it did cause me to throw up a number of times - I just HAD to see my baby). By Friday, the day I was discharged from the hospital, I was walking back and forth from my room to the NICU without any assistance. My milk was even coming in nicely (which it never did with Cam). Everything was looking good!
Then we received a phone call. On Friday, June 3, we were just getting packed up to go home when my OB, Allyson Servoss, called with results of the biopsy. She told us something that had never even crossed our minds. They had found cancer in my ovary. She had already gotten in contact with one of the top ovarian cancer specialists in the nation (here in Utah) and she would help set up an appointment with him. The type of cancer that came back with the initial pathology report was fairly rare. So it was being sent back east to be evaluated by specialists at Mass General in Boston. But from what they could tell, after I healed from my c-section, I would just need to go in for surgery again to have the rest of my ovary removed and we'd most likely be in the clear. We were devistated, but it could be worse, right?
The worse came later.
The next two nights were spent at home with me trying to sleep between bouts of coughing. Anytime I would lay flat on my back or wasn't propped up on my side, I would feel my chest tightening and I had a hard time breathing. By the second night, we started to get concerned. So on Sunday (why did everything in this story take place on a Sunday?!?), I called my OB's office and was told I may have a blood clot and that I should go to the ER to be checked out. Luckily I was already at the hospital visiting James so I just had to wait for Brant to drop off Cam at his parents' house and come meet me.
In the ER, they did a chest CT scan & a bunch of blood tests. After waiting for eternity (or so it seemed) the ER doctor, Dr Dillon, came in and shut the sliding glass doors behind him. We knew we were about to get some bad news. But what he told us, neither Brant or I ever imagined. The cancer that was discovered in my ovary was also in my sternum, spine, and both lungs. I was diagnosed with stage 4 cancer at the age of 32 only 6 days after delivering my second son.
From there, the next 48 hours were basically a blur. I was immediately re-admitted to the hospital - this time a patient on the internal medicine floor. My doctor was a girl from my freshman ward at BYU. An oncologist was contacted and more tests were scheduled. More blood was drawn. Over the next two days I would get an MRI, full CT scan, and a bone scan. From these tests, additional cancer was to be found in both halves of my liver. This, besides the breathing, was causing me the most pain/discomfort. So I wasn't really surprised by this additional bad news. The good news was that the cancer had not spread to my brain or any other bones besides those already detected via CT scan.
But we still didn't know exactly what type of cancer was invading my body. The doctors believed it to be a carcinoid cancer which provided two possibilities- aggressive or non-aggressive. Either way, we weren't looking at a cure. Just a treatment & determining how much time I'd have to raise my two little boys and be with my husband.
On Wednesday, June 8, we learned that the cancer was not a carcinoid. Though we did not have the official final pathology report, we found out it was an even rarer form of cancer called neuroendocrine carcinoma. My OB delivered the news after she had done some research on it, only to come up with very little information. However, she had a contact at MD Anderson, the top cancer research center in the country, that she was going send my case to for him & his colleagues to review.
That brings us to today. We're still playing the waiting game. Not knowing the final pathology report which should help us know how best to fight this. We've talked with a number of people at the Huntsman Cancer Institute and our appointment with our oncologist at Utah Cancer Specialists, Dr Wayne Ormsby, is on Tuesday. So until then, our future is a big black hole. We don't know what treatments we will be going through. We don't know the survival rate of such a rare cancer. We don't know how much time I'll be able to be a mommy to my two boys here on earth. We don't know how much time I'll have before making the man I love a widower. We don't know the quality of life I'll have (and my family will have). And all this not knowing is scary.
We've had a few days when we were crying more often than not. And we've had days when we can spout out the facts without crying - pretending it's not really happening & not thinking about the future. As long as we can stay in the present, Brant & I do ok. But when either of us thinks about what our future holds in store, that's when it's hard to deal with reality.
So for the next few days, we're focusing on "today". We're focusing on Cameron and James. We're focusing on us in the here & now.
James is my life saver. And for that, we named him after his mom - James Kris Carpenter. He came early for a reason. He came early to give me the best chance at fighting this terrible disease. And so for him I am going to fight. For Cameron, who has been through so much these past two-three weeks, I am going to fight. And for Brant, who is my love and my eternal companion, I am going to fight! I don't know how long I will be around. But every second that I am given here on this earth I am going to fight! I know I have some very hard days/weeks/months/years ahead of me. But I have Brant and my two little boys and all of my family and friends to help get me through.
I've already seen such an outpouring of love and support from family members, friends, the amazing doctors & nurses at LDS Hospital, and even people I've never met. I've felt the prayers and faith of so many people. And for that I am so grateful.
I both look forward and dread Tuesday. I am anxious to start fighting this disease. But I'm nervous to face the facts of my situation and lose the ability to pretend that I'm like any other new mom with an almost two week old in the NICU and three year old at home. That is a challenge in itself. I pray I'm strong enough to be that mom of a NICU baby and three year old and also undergo cancer treatments. And I pray Brant has the strength to be a dad of a NICU baby and a three year old and husband to his young wife who has to undergo cancer treatments.
But until Tuesday... Here's to pretending life is good!