Narcoleptic Knights

What about diet? I have found that diet as a treat...

2018-10-17T08:59:07.210-05:00

What about diet? I have found that diet as a treatment for narcolepsy to be so helpful for me.

Wishing you well.

I have the same problems. I've found that comp...

2014-08-11T00:06:01.821-05:00

I have the same problems. I've found that complaining at appointments repeatedly makes a difference. My doctor also writes all 3 prescriptions at once with a "do not fill before" date on them

tried both. I had extreme Jae clenching and my hai...

2013-02-07T09:52:16.372-06:00

tried both. I had extreme Jae clenching and my hair started falling out :-( felt disoriented often on those. jaw not Jae

Be careful with your Xyrem. Today, the FDA releas...

2012-12-17T15:52:27.749-06:00

Be careful with your Xyrem. Today, the FDA released a reminder on how dangerous it can be, if used incorrectly. It can cause impaired consciousness and depressed breathing. Read the entire FDA alert here (http://www.rxwiki.com/fda-alerts/xyrem-taken-alcohol-or-cns-depressants-impairs-consciousness-and-leads-breathing-problems) and discuss it with your doctor.

Hi, Anyone tried using Provigil or Modafinil to ...

2012-11-11T20:49:22.786-06:00

Hi,

Anyone tried using Provigil or Modafinil to help with Narcolepsy?

Thanks

GetRxPrice

2012-09-25T04:58:26.130-05:00

GetRxPrice

Hi I found a good web-site that compares medicine...

2012-09-25T04:57:09.858-05:00

Hi

I found a good web-site that compares medicines prices, I thought I would share:

http://www.getrxprice.com/

Regards

Hello I want to ask if you have had any experienc...

2012-09-09T20:10:42.616-05:00

Hello

I want to ask if you have had any experience with Provigil (Modafinil)? How was it?

Thanks and Regards

Hi Have you ever tried Provigil? a good place wh...

2012-08-22T04:14:50.614-05:00

Hi

Have you ever tried Provigil?

a good place where they offer good prices on Provigil, not sure about Modafinil…

I completely agree that hearing about other people...

2012-04-11T18:45:42.208-05:00

I completely agree that hearing about other people's experiences is extremely helpful. It makes me feel like I am not struggling alone. I wanted to share a great website, http://onlineceucredit.com/edu/social-work-ceus-sd , that has a lot of great information about coping with narcolepsy. Keep up the great blogging!

So glad to have you back! I have been gone awhile...

2011-04-26T23:00:47.795-05:00

So glad to have you back! I have been gone awhile to, and yes I understand:)

Vaya con Dios my friend.
Ja

Welcome back to blogging! Looking forward to readi...

2011-03-24T10:18:59.295-05:00

Welcome back to blogging! Looking forward to reading more.

please add my blog to your list www.diaryofamadna...

2011-02-07T14:19:53.325-06:00

please add my blog to your list

www.diaryofamadnarcoleptic.blogspot.com

I am trying to get the word out about our disease and get more funding...thanks

I thought that I was imagining things. The forums...

2010-11-04T12:39:41.629-05:00

I thought that I was imagining things. The forums really have become stagnant and I couldn't quite figure out why. It saddened me. At least I'm not the only one who noticed.

best,
jenji

Hi, You have an extremely great blog. Most of the...

2010-10-11T00:37:30.212-05:00

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Are all the fears about xyrem overexagerated? I...

2009-11-25T14:44:36.918-06:00

Are all the fears about xyrem overexagerated? I'm thinking of trying it. Also, what insurance plans cover it?

Excellent! We are neighbors now! good cuz the com...

2009-10-26T06:01:10.377-05:00

Excellent! We are neighbors now!

good cuz the comment system here I cant figure out!

~ Marcia

Hello Friend, I am sorry i couldn't get back t...

2009-10-25T23:10:34.553-05:00

Hello Friend, I am sorry i couldn't get back to you sooner. I was not able to go due to finances. I am interested if anything new was learned at the convention?

NarcoGirl, thanks for the comment. Stu was actuall...

2009-09-15T01:58:15.411-05:00

NarcoGirl, thanks for the comment. Stu was actually webmaster. I was a moderator and decided to leave for a number of reasons. Likely, I will blog on it soon. Narcolepsy Network seems to be less the problem for me than a few board members.

you're the 2nd person I've heard having pr...

2009-09-14T04:14:17.490-05:00

you're the 2nd person I've heard having problems with Narcolepsy Network, but I have no idea what is going on-have there been changes brewing?? I see Stu is leaving as a moderator...hmmm.....anyway, glad to see ya back :-)

wow! that is one heck of a trip! I am glad you all...

2009-08-14T02:46:31.253-05:00

wow! that is one heck of a trip! I am glad you all made it through unscathed. Travel tension is normal, and you seem to handle it well. I myself am on vacation also but cant blog because I forgot my computer in my moms car... lol. and I cant remember the web address to do it. lol.
its all been going well though.

hope you all had fun! talk to you soon!

Wolfie, thanks! It is good to know that I am not a...

2009-08-09T22:33:29.700-05:00

Wolfie, thanks! It is good to know that I am not alone. We did get home in one piece, and all of us were relatively upbeat. I am planning to give myself two days to recover. I only had to drive for one leg of the trip, which is good. That's all I had in me!

Highway driving is so hard when it takes all of yo...

2009-08-08T21:47:28.531-05:00

Highway driving is so hard when it takes all of your energy to focus on paying attention to the road. It's impressive that you were able to drive so far. I've been to that edge of total exhaustion before and it's not fun. Good luck with the rest of your trip and I hope you can get home without being completely drained.

Wolfie and NarcoGirl, thanks! The week has been ok...

2009-08-06T19:30:55.500-05:00

Wolfie and NarcoGirl, thanks! The week has been okay, but my sinuses are kickin' my butt!

Enjoy your vacation and hang in there. I love Gatl...

2009-08-04T13:00:55.553-05:00

Enjoy your vacation and hang in there. I love Gatlinburg, I got married there :-)